In July 2012, after countless visits to the pediatrician, Adrian’s parents felt something was not right and rushed him to Randwick Children’s Hospital. The next day (5th July 2012) they received the devastating news that Adrian (on right) had stage 4 Neuroblastoma Intermediate risk.

Within 48 hours chemotherapy started and during the next 6 months Adrian endured 8 rounds of chemotherapy and surgery to remove the primary tumour located on one of his adrenal glands. Treatment finished in January 2013 whereby the doctors monitored his remaining residual tumour through 3 monthly scans for the first year.

On June 2015, Adrian unfortunately relapsed. Treatment once again started immediately this time with the high risk protocol which consisted of 10 rounds of chemotherapy, bone marrow transplant, 14 sessions of radiation to his neck, 5 sessions of immunotherapy and an additional 14 sessions of radiation to the left eye orbit.

Adrian completed his treatment on November 2016 however he remained with some traces of neuroblastoma behind his left eye orbit. In February 2017 the family received the wonderful news that Adrian was clear of disease in his left orbit region, however on May 2017 scans showed once again there was a recurrence.

A decision was made by his doctor in June 2017 for Adrian to begin a clinical trial with a drug called DFMO currently available in Australia. Adrian has fought each battle with determination. Adrian’s parents only wish is that this treatment is successful to rightly allow him to enjoy his childhood.

It’s been a long 5 1/2 years, but Adrian and his family are not ready to give up.