In August 2013, Joshua and Sarah Weir were concerned about their daughter Evie as she had been vomiting and feeling unwell.

Only a week after Evie’s second birthday she underwent tests and scans that led to the devastating diagnosis – she had stage 4 neuroblastoma. The primary tumour was discovered in her adrenal gland, as well as other tumours throughout her body. The disease had also spread to her bone marrow.

Evie responded well to the first course of treatment, which included five rounds of chemotherapy, but later that year she had major abdominal surgery to remove the tumour.

Early the next year, following more rounds of chemotherapy, Evie then had a bone marrow transplant from her own stem cells. After a long recovery, she underwent another 12 rounds of radiation and six months of immunotherapy – the last of her treatments.

Three months later, just when life was starting to get back to normal, another tumour was discovered – this time in her head. She had an operation to remove the tumour with more chemotherapy to follow, but only eight months later another tumour was detected.

Evie had her second neurosurgery to remove the new tumour, followed by 16 rounds of head and spine radiation and since then, her three monthly scans have all been clear.

Joshua and Sarah feel incredibly grateful to still have Evie with them and treasure every day with her.

“You never know what tomorrow holds, so we just enjoy today,” says Evie’s mum, Sarah.

Evie’s family have been incredible supporters of Run2Cure and raised over $30 000 for Run2Cure.

Evie Weir