In late January 2017 William had become lethargic and had slight pains in his belly.

At first the pain was not consistent and there was no vomiting, temperature or visible signs of it being anything of any major concern. However, after a week the pain and lethargy had increased and so his mother Danielle took him to the family GP where he was referred for tests.

The next day William had an X-ray which showed something on the right lung, which was believed could have been pneumonia, but an ultra sound showed many more lumps in William’s abdomen -leading to the devastating realisation that something was dreadfully wrong.

The following day William was admitted to Westmead Children’s Hospital, where tumours were found throughout his body, except for his head. Doctors had diagnosed him with Stage 4 Neuroblastoma and he immediately commenced treatment, which included five rounds of chemotherapy, in an effort to shrink the tumours.

After the last round of chemotherapy, William then underwent a nine-and-a-half-hour long surgery, to remove two sections of his liver with tumours. Only 24 hours before this, his parents were also given news that the primary tumour had stretched across to the lining of his heart.

Following the surgery, he has had another round of chemotherapy and two bone marrow transplants and is now in hospital recovering before future treatments of radiation and immunotherapy. Towards the end of 2017 William relapsed and currently his oncologists are reviewing treatments. We are hoping 2018 will bring some positive news for William and his family.

William’s cousin, nine-year-old Matilda, had no hesitation in deciding to have her lovely golden locks shaved off from the moment she found out chemotherapy would cause him to lose his hair. The two are not only cousins, but great friends and Matilda wanted to show her support and help raise money for his care and the Children’s Hospital at Westmead.

Update: Very sadly William passed away on April 2nd 2018.

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